The Outcomes of Patients with Haemoglobin Disorders in Cyprus: A Joined Report of the Thalassaemia International Federation and the Nicosia and Paphos Thalassaemia Centres (State Health Services Organisation)

Haemoglobinopathies, including thalassaemias and sickle-cell syndromes, are demanding, lifelong conditions that pose a significant burden to patients, families, healthcare systems. Despite the therapeutic advances resulting improvements in prognosis accomplished past decades, these patients still face important challenges, suboptimal access quality care areas with developing economies, changing epidemiology due massive migration flows, an evolving clinical spectrum ageing well-treated limited novel high-cost therapies. We herein describe organization of services for haemoglobinopathies Cyprus—with particular focus on beta-thalassaemia, most prevalent condition this region—along selected patient outcomes. This report aims at underscoring fact nationally funded well-coordinated prevention programmes chronic complex conditions, such as haemoglobinopathies, active involvement from organizations lead effective disease control excellent outcomes survival, life, social adaptation, public health savings, allow timely responses emerging crises, COVID-19 pandemic. The Cyprus paradigm could therefore serve blueprint or adaptation haemoglobinopathy programs other countries since disorders widely occurring.